123hotchef
Member
- Messages
- 14,195
- Location
- Kent
Life.is priceless mate.glad.its.workingI was lucky in that I was diagnosed very early, at which point it was described as 'smouldering' [a reading of 15] and began treatment by tablets. The reading rose slowly over a few years until it reached 66 and the Consultant decided I should be offered a stem-cell transplant [same as @Pete.'s Dad, but I wasn't part of a study and probably benefited from his courage in volunteering ].
I had a good remission [side effects aside ] but after c 5 years the cancer was accelerating again and I was offered a 2nd transplant, which I declined owing to the continuing results from the first. Then onto a drug regime which went from thalidomide [bad reaction knocked that on the head] then a derivative Lenalidamide/Dexamethasone combination, and latterly Pomalidamide**/Dex' together.
Eventually [after three years] these became less effective [reading increasing and showing an exponential upward trend. So, a switch in regime type was introduced to Daratumamab/Dexa' combo and this is producing the v good results atm.
Apologies for the novel but it's difficult to give a precis to explain fully & clearly.
** That's an oral chemo capsule taken daily for 21 days out of 28 - and it costs £9,000 per 21-day cycle, I was on it for 3 years so do the maths.... The Daratumamab is, at least, cheaper